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Showing posts from 2018

The Mom of a Teenager

As I sit here writing this, I mark 13 years since I was in labor with Charlotte. I am the mom of a teenager. And yet, I’m not. Every year, Charlotte’s birthday hits me a different way. Every year in the grief process is a little bit different. The arrival of her birthday so close on the heels of the end of the school year frequently triggers thoughts for me about how Charlotte’s peers continue to move forward while she Seriously. Kids these days... remains frozen in time as a four year old. As the school year ends, I see her peers moving on to middle school, attending dances, achieving milestones, and just plain getting older (Puberty! Eek!). It always leaves a twinge of jealousy and sadness in my heart. I try to imagine what she would be like, what her interests would be. Knowing how much she was my “mini-me” as a youngster, I lift up hope that she might have strayed from my junior high life as an awkward, frizzy-haired, coke-bottle-eyeglass-wearing teenager.

Diagnosis Day Redux

Yes. It's been a long time since I've blogged. Doesn't mean my mind hasn't been churning.  It's *Diagnosis Day*. The picture below was taken by Roger as they were waiting at the hospital for CAT scan results on January 20, 2009. I shared our story yesterday at a Synapse meeting, rather unexpectedly. A "teaser" from another member about the  Thumbs Up Ball 2018  and the pending anniversary of this date were both combining factors that helped me decide to share the story. This day in 2009 is forever etched in my brain. There are few details that I have forgotten. I remember Roger picking me up from a full morning of teaching at Romp n' Roll after he'd already spent hours with Charlotte at the pediatricia n and at St. Mary's for a CAT scan. I remember grabbing a quick lunch from the Drive-Thru of Chick-fil-A, but not really wanting to eat anything. (Not wanting to eat CFA? I know! Right?) I remember using my non-smart phone to call friends